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Alzheimer's Disease: Activity Focused Care, Second Edition

by Carly R. Hellen, OTR/L

This updated manual provides practical and innovative strategies for care of people with Alzheimer's disease.

Full Description:   

OUT OF PRINTUnfortunately this books is out of print! Old Stock may be able available. Contact us to locate a copy for you.

This unique guide provides practical and innovative strategies for care of people with Alzheimer's disease. It is written from the viewpoint that activity-focused care promotes the resident's cognitive, physical, psychosocial, and spiritual well-being. The text is very readable and highly recommended for caregivers and families of people with Alzheimer's disease.

Alzheimer's Disease: Activity-Focused Care helps the resident with dementia achieve a life of meaning, connectedness, and respect. Identifying the residents' abilities, not focusing on their inabilities, it teaches how "should's" and "can'ts" can become "could's" and "can's." Caregivers are offered problem-solving techniques so they can make informed decisions at the time needed for the resident seeking assistance.

  • Includes forms and profiles for use by therapists and nurses
  • Presents a holistic treatment program
  • Features topics including: sexuality and intimacy, couples with dementia, spirituality, refocusing activities for physically combative or violent situations



    1. Activity-Focused Alzheimer's Care
    Activity-Focused Care: Defined
    The "Activity" of Life: Search for Meaning
    Ability Centering: Upholding and Maintaining Competence
    Cognitive and Physical Ability Centering and Challenges
    Ability-Centered Plan of Care
    Caregiving: Defined as Purposeful Activity
    The 10 Commandments of Alzheimer's Care
    Health Care Providers and Staff Issues
    Suggested Reading
    1-1 Alzheimer's Disease: Symptoms and Challenges
    1-2 Ability-Centered Plan of Care
    2. Maintaining Personhood: Psychosocial Aspects of Support
    Promoting Life's Meaning and Personhood
    Psychosocial Ability Centering and Challenges
    Being Values, Not "Discounted"
    An Alheimer's Disease Patient's Bill of Rights
    Residents with an Integrated Self-Image
    Residents with a Compromised Self-Image
    Depression: Overwhelming Sadness
    Interventions and Support of Psychosocial Needs
    Being Included: Respected Connectedness
    Couples with Dementia: Finding Balance
    Development of a Psychosocial Support Group for Residents with Moderate Impairment
    Staff Personhood: A Staff Statement of Respect
    Health Care Provider and Staff Issues
    2-1 Dementia Support Group Theme Facilitation Plan Example
    2-2 Support Group Game
    2-3 Staff Empowerment Considerations
    2-4 Administrators Walk in Assistances' Shoes
    2-5 Forms for Resident Case Study
    3. LifeStory Book: LifePreserver for LifeAffirmation
    LifeStory Book Indicators: LifeAffirmation
    LifeStory Book: Contraindications for Use
    Book Format Suggestions
    LifeAffirmation: Book Content Recommendations
    Family Suggestions and Quality Involvement
    Guidelines for Staff Use of Books
    Suggested Reading
    3-1 LifeStory Book Letter to Families
    4. Communication: Understanding and Being Understood
    Words: Bloomers or Witherers?
    Communication: Guidelines for Connecting
    Vocal and Spoken Communication
    Nonverbal and Implied Communication
    Language of Touch
    Assessing Communication in Late-Stage Dementia
    Assessing the Environment for Promotion of Communication
    Health Care Providers and Staff Issues
    4-1 Communication and Environmental Assessment Form
    4-2 Communication Assessment Profile Form for Residents with Late-Stage Dementia
    5. Daily Living Care Activities
    Dementia Factors Affecting Daily Care Activities
    Using Sensory Profile
    Activities of Daily Living Guidelines
    Hands-on Care Strategies
    Bathing, Hygiene, and Oral Care
    Dressing and Disrobing
    Finding and Using Toilet Appropriately and Incontinence
    Health Care Provider and Staff Issues
    Suggested Reading
    5-1 Daily Life Tasks: Resident Abilities, Challenges and Assistance Needed
    5-2 Sensory Profile
    5-3 Nursing Assistances' Care Conference Activities of Daily Living Resport Form
    5-4 Resident Basic Care Information Form
    5-5 Sample Dressing Policy and Procedures: Supporting the Symbolism of Clothing
    5-6 Sample Staff Support Policy and Procedures: "Do What You Have To Do"
    6. Eating and Mealtime: An Activity of Consequence
    Eating: How Do You Promote Success?
    Eating and Meatime Intervetions and Facilitation
    Eating Behaviors Exhibited and Problems Encountered
    Possible Causes or Antecedents of Eating Problems: Cognitive Challenges
    Possible Causes or Antecedents of Eating Problems: Physical Challenges
    Possible Causes or Antecedents of Eating Problems: Psychosocial Challenges
    Possible Causes or Antecedents of Eating Problems: Environmental Challenges
    The Humiliation of Being a "Feeder"
    Increasing Food Consummmed and Nutrition: Approaches and Interventions
    Dietary Department: Food Modifications and Mealtime Support
    Dinind Environment and Equipment Support
    Mealtime Assistance: Activities Involvement and Other Staffpersons
    Family Involvement at Mealtime
    Late or Terminal Care Nutritional Assessment and Challenges
    Health Care Provider and Staff Issues
    Suggested Reafings
    6-1 Sample Policy and Procedures: Supporting Optimal Nutrition for Residents with Dementia
    6-2 Finger Food Suggestions
    6-3 Nutrient-Dense Recipes
    7. Physical Wellness: Mobility and Exercise
    Dementia Factors Affecting Mobility
    Promoting Mobility and Independent Ambulation
    Assiting Mobility
    Caregiving for Immobile Residents
    Assessing for Falls
    Functional Maintenance and Rehabilitation Programs
    Physical Restraints: Definition, Issues, and Efficacy
    Dementia Factors Affecting the Use of Restraints
    Negative Effects of Restraints
    Alternatives to Restraints
    Restraint Use Considerations: Can There Be Positive Outcomes?
    Health Care Provider and Staff Issues
    Suggested Reading
    7-1 Exercises, Balance, and Strengthening
    7-2 Fitness Trail: Examples of Exercises for Fitness Trail
    7-3 Activity-Focused Mobility Task Example: Getting into a Car
    7-4 Sample Fall Assessment Form
    8. Behaviors: Understanding, Creative Interventions, and Refocusing
    Risk Factors Precipating Behavioral Manifestations
    Guidelines for Understanding and Refocusing Behaviors
    Implementing a Behavior Profile
    Tracking Behavioral Petterns: A Behavior Observation Form
    Problem Solving: A Behavior Analysis Form
    Safety in the Community: Elopement and a Police Dispatch Form
    Behavior Analysis Examples
    Safety Issues: Physically Aggressive, Combative, or Violent Situations
    Resident Behavioral Responses
    Health Care Provider and Staff Issues
    Suggested Reading
    8-1 Behavior Profile Form
    8-2 Behavior Observation Form
    8-3 Behavior Analysis Form
    8-4 Community and Civic Professionals Training Outline
    8-5 Lincolnshire Police Department Residential Checklist for THe Wealshire
    8-6 Catastrophic Reaction Analysis
    9. Meaningful Activites: Daily Life Stuff
    Daily Stuff: How Do You Spell Success?
    Objectives of and Activity
    Criteria for a Successful Activity
    Qualities of an Activity: Cognitive, Physical, Psychosocial, and Spiritual
    Activity Analysis: Can "Anything" Be a Meaningful Activity?
    Identifying the Therapeutic Value of an Activity
    Activity Assessment and Grouping Residents for Effective Activities
    Who Does Daily Stuff?
    Making it Happen
    Basic Stuff
    Thinking Activities: Encouraging Cognitive Participation
    Movement Activities
    Psychosocial Activities
    Spiritual Activities
    Life Work and Normalization Activities
    Community Partnership and Service for Others Activities
    Intergenerational Activities
    Activities for Engaging Male Participation, Enjoyment, and Satisfaction
    Shoestring and Wearable Activities for Residents with Short Attention Spans
    One-to-One Activities
    Sensory Stimulation and Activities for Late-Stage Dementia Care
    Activities for Behavioral Refocusing and Effective Intervention
    Activities for Therapeutically reducing the Prevalence, Onset, or Intensity of Aggressive or Combative Behaviors
    Activities for Residents Who Pace and Wander
    Activities for Refocusing "Searching and Discovering"
    Activities for Loneliness, Sadness, and Depression
    Health Care Provider and Staff Issues
    Suggested Reading
    9-1 Activity Analysis Example: Using a Beach Ball
    9-2 Reminiscing Kits
    9-3 Sample Policy and Procedures: What Is am Age-Appropriate Activity?
    9-4 Sample Policy and Procedures: What Is a Life Work or Normalization Activity
    9-5 Life Work Activity Examples
    9-6 Community Partnership Example Letter: Creating Meaningful Activity Opportunity for Nursing Home Residents
    9-7 Community Partnership and Collaborating Forces to Enhance Quality of Life: Much More Than Just Entertainment
    9-8 Activity Therapist Job Description Examples
    9-9 Activity Therapy Care Conference Report Form
    9-10 Activity Therapy Care Conference Report Form Information: Therapeutic Value
    10. Expressions of Intimacy: Giving and Receiving Affection
    Inclusiveness of Intimacy
    Intimacy-Related Responses: Enabling Strenghts and Diminishing Challenges
    Using an Intimacy Profile
    Masturbaction: Self-Directed Intimacy and Caregiving Interventions
    Overt or Hypersexuality: Issues and Caregiving Interventions
    Guidelines for Intimacy Expressions in Care Facilities
    Health Care Provider and Staff Issues
    Suggested Reading
    10-1 The Changing Face of Intimacy
    10-2 The Joy of Life: Compassionate Relationships
    10-3 Expressions of Intimacy Guidelines for Persons with Dementia Residing in Care Facilities
    10-4 Expressions of Intimacy: Analysis
    10-5 Intimacy Profile
    11. Spirituality: Compassionate Connectedness and Well-Being
    Appraising Spiritual Well-Being and Needs
    The Clergy, Caring Congregation, and Confused Worshipper
    Clergy Support for Persons with Dementia and Their Families
    The Congregation's Shared Communion of Love and Support
    The Confused Worshipper
    Creative Ministry: Uniting and Alzheimer's Care Center and a Local Congregation
    Creating a Praise, Thanksgiving and Worship Center
    Activity-Focused Adapted Worship Service Guidelines
    Activity-Focused Worship Examples: To Be Called By Name
    Service of Remembrance: Celebrating Our Friend
    Health Care Provider and Staff Issues
    Health Care Provider and Staff Issues
    Suggested Reading
    11-1 Religion, Spiritual, and Sacred Center Assessment of Compassionate Connectedness
    12. Terminal Care: Final Storm Weathered
    A Cherished Sentinal
    Family Grief: Sadness without End
    Pain: Recognizing and Responding to the Message
    Hospice: Final Days with a Caring Team
    Terminal Care Considerations
    Medical Issues and Impending Death
    Psychosocial Issues
    Communication: "Talking Touch"
    Activities fo Daily Care: Enabling Dignity
    Nutrition and Eating
    Mobility: Assisted and Passive Movement
    Behavior: Challenging Demonstrations
    Activities: Honoring Simplicity
    Spiritual Support: Compassionate Connectedness
    Death: Creation of a "Cherished Sentinel"
    Autopsy: The Opportunity of Gifting Others
    Health Care Provider and Staff Issues
    Suggested Reading
    12-1 Alzheimer's Patient Hospital Transfer Information
    12-2 Alzheimer's Patient Hospital Transfer Information Explanation and Worksheet
    13. Family Caregivers: Needs, Partnership, and Support
    Grief and Loss
    Making Nursing Home Placement Decisions
    Nursing Home's Response: Building the Bridge
    Admission Day: Suggestions on Getting the Resident to the Home
    Admission Day: Family Mourning
    Caregiving Partnership in Action
    Facilitating Change: A Family Survival Handbook
    Involvement: "Coulds" Versus "Shoulds"
    Visiting: An Opportunity for Connectedness and Volunteering
    Special Opportunity: Holidays, Family Weddings, and Special Events
    Partnership in Action: Plan-of-Care Conference
    Family Support: One to One or Group
    Family Support: When Both Parents have Dementia
    Partnership: Educational Opportunities and Families as Teachers
    Family and the Dying Resident
    Health Care Provider and Staff Issues
    Suggested Reading
    13-1 Twelve Steps for Caregivers
    13-2 Care for Caregivers
    13-3 Preadmission Information Form
    13-4 Activity-Focused Nursing Home Visits
    13-5 Coping with the Holidays and Gift Suggestions
    13-6 Family Care Conference Form
    Ability-Centered Plan-of-Care Glossary of Terms for Residents with Dementia


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